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PRODID:-//CdLS Foundation - ECPv6.15.18//NONSGML v1.0//EN
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METHOD:PUBLISH
X-ORIGINAL-URL:https://www.cdlsusa.org
X-WR-CALDESC:Events for CdLS Foundation
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
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TZID:UTC
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TZOFFSETFROM:+0000
TZOFFSETTO:+0000
TZNAME:UTC
DTSTART:20200101T000000
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20210516
DTEND;VALUE=DATE:20210517
DTSTAMP:20260505T072102
CREATED:20210429T212448Z
LAST-MODIFIED:20210429T222945Z
UID:3762-1621123200-1621209599@www.cdlsusa.org
SUMMARY:CdLS Race to Tulsa
DESCRIPTION:Join the Local Planning Committee for a virtual race benefiting CdLS. Cornelia de Lange Syndrome or CdLS is a rare genetic syndrome that causes a broad range of physical\, cognitive\, and medical challenges for the diagnosed individual. Every two years the CdLS Foundation hosts a Family Conference where individuals with CdLS and their families from around the world can attend to learn about CdLS\, how to care for individuals with CdLS\, seek medical advice with multiple specialists\, and bond with other families similar to their own. All proceeds from this virtual race will be donated to the 2022 Family Conference located in Tulsa\, OK. \nThis virtual race is a fun run with different race options (1K\, 5K\, 10K) making it a perfect activity for individuals or the whole family. Some great swag is included such as a custom medal and printable race bib. You can post your results and upload photos online to share your experience. Don’t want to walk/run\, but still contribute to this great cause? Donations can be made using the donation button and are always welcomed! Grab your friends and family to race from your place to Tulsa\, OK! \nIf you have any questions about this race\, please contact the race director at cdlsconferencelpc@gmail.com.
URL:https://www.cdlsusa.org/event/cdls-race-to-tulsa/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2021/04/CdLS-Race-to-Tulsa-1.png
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