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CdLS Research Grants

CdLS Research Grants

The CdLS Foundation has a vision and researchers have the determination to find treatments to help individuals with CdLS overcome many of the challenges they face.

The next grant cycle begins January 15, 2017

Background
CdLS is a genetic condition causing a range of medical, developmental and physical challenges, including:

  • Gastroesophageal reflux
  • Craniofacial defects
  • Heart defects
  • Seizures
  • Immunodeficiency
  • Self-injurious behavior
  • Communications issues (e.g., selective mutism, non-verbal, etc.)
  • Developmental delays and intellectual disability
  • Behavioral problems and autism
  • Feeding problems

CdLS is a cohesinopathy caused by mutations in any one of the following genes: NIPBL, SMC1A, SMC3, HDAC8 and RAD21. Only 70 percent of individuals tested to date have a change in any of the mentioned genes, with the majority having an NIPBL mutation.

Timeline
Letters of Intent deadline: February 28, 2017*
Application deadline: March 31, 2017
Award notification: May 31, 2017
Grant checks mailed: September 1, 2017

*Once a Letter of Intent has been submitted, proceed with the remainder of the grant application. The purpose of the Letter of Intent is to help the Research Committee to obtain the appropriate reviewers for your grant application.

Next Grant Cycle begins in 2018

View the guidelines and grant application

Funding is available annually. The next grant cycle begins in early 2017.

The Foundation has previously approved grants for the following projects:

For questions,