CdLS-USA Foundation Publications

Facing The Challenges

An invaluable guide providing emotional support and factual information to those facing the challenges of caring for a person with Cornelia de Lange Syndrome (CdLS).

Reaching Out

The CdLS-USA Foundation’s cornerstone newsletter, published bi-monthly since 1977.

Fact Sheet

This brochure provides answers to some of the most frequently asked questions about CdLS.

Articles About CdLS

CdLS-related materials from members of the CdLS Foundation International Scientific Advisory Council (SAC).

CyberNews Archives

Past issues of the Foundation’s monthly electronic newsletter.

Family Mailbag

Read letters from members of the CdLS-USA Foundation.

Awareness Flyer

Have you seen a child with CdLS? Once you’ve seen their faces, you’ll never forget.

Sample Press Release

Need a press release to publicize your awareness or fund raising event? Use this one and add your information.

Recommended Reading List

Compiled by experts on the syndrome, the list contains some “must reading” on a variety of issues facing families and caregivers of individuals with CdLS.

The PDF files require that you have Adobe Acrobat Reader version 3.0 or later installed on your computer.