Outside Links

Outside Links

GEMSS: Genetics Education Materials for School Success
http://www.gemssforschools.org/conditions/cornelia-de-lange/default.aspx

Medical Home Portal: Families
http://www.medicalhomeportal.org/diagnoses-and-conditions/cornelia-de-lange-syndrome/description

Medical Home Portal: Professionals
http://www.medicalhomeportal.org/cornelia-de-lange-syndrome-continuing-medical-education

NORD: National Organization for Rare Disorders
NORD is dedicated to help people with rare "orphan" diseases and assisting the organizations that serve them.
http://www.rarediseases.org

NICHCY: National Dissemination Center for Children with Disabilities
NICHCY serves the nation as a central source of information on disabilities in infants, toddlers, children, and youth, IDEA, which is the law authorizing special education, No Child Left Behind (as it relates to children with disabilities), and research-based information on effective educational practices.
http://www.nichcy.org

TASH
TASH is an international association of people with disabilities, their family members, other advocates, and professionals fighting for a society in which inclusion of all people in all aspects of society is the norm
http://www.tash.org

CdLS World
http://www.CdLSworld.org

Resources for Siblings
http://wikiadvocacy.org/index.php/Sibling_Support
http://www.nichcy.org/familiesandcommunity/pages/siblingissues.aspx
http://www.siblingsupport.org/
http://www.med.umich.edu/yourchild/topics/specneed.htm