GEMSS: Genetics Education Materials for School Success
Medical Home Portal: Families
Medical Home Portal: Professionals
NORD: National Organization for Rare Disorders
NORD is dedicated to help people with rare "orphan" diseases and assisting the organizations that serve them.
NICHCY: National Dissemination Center for Children with Disabilities
NICHCY serves the nation as a central source of information on disabilities in infants, toddlers, children, and youth, IDEA, which is the law authorizing special education, No Child Left Behind (as it relates to children with disabilities), and research-based information on effective educational practices.
Cure the Process
The CURETHEPROCESS Campaign strives to inspire science-driven public policy that will increase the predictability of the regulatory process for rare disease treatments.
TASH is an international association of people with disabilities, their family members, other advocates, and professionals fighting for a society in which inclusion of all people in all aspects of society is the norm
CdLS Online Support Group
Resources for Siblings