Cornelia de Lange Syndrome Foundation, Inc.
302 West Main St. #100
Avon, CT USA 06001
Phone: 860-676-8166
Phone: 800-223-8355
Fax: 860-676-8337
email: info@cdlsusa.org

Press Room

Welcome to the CdLS Foundation Press Room. Here you can view 2009 CdLS Foundation press releases and CdLS-related news coverage. For specific information about CdLS and the Foundation, please go to About Us. Links to 2006, 2007 and 2008 press archives are below.

News Releases

Team CdLS debuts at the Manhattan Beach 10K (9/9/09)
Nearly 40 people take to the starting line of the Manhattan Beach 10K Saturday, October 3 to raise funds for children with Cornelia de Lange Syndrome...
Team CdLS heads to Chicago (9/8/09)
Team CdLS runs the Chicago Marathon, October 11, to honor and support children with Cornelia de Lange Syndrome (CdLS)...
Parents host 17th annual CdLS Charity Golf Tournament(05/14/09)
The Cornelia de Lange Syndrome (CdLS) Charity Golf Tournament takes to the fairway for its 17th year on Monday, May 18...
Families across the country "tag the day" for CdLS (05/13/09)
Benefit yard sales take place throughout the country Saturday, June 6, as part of the...
Teen named ambassador of Team CdLS (04/20/09)
William Smisloff, a 17- year-old Ballston Spa resident born with Cornelia de Lange Syndrome (CdLS), has been named...
Funding aids CdLS research, outreach (04/02/09)
Cornelia de Lange Syndrome (CdLS) research and awareness efforts are both getting a boost from the federal government...
National CdLS Awareness Day marks 20 years (03/25/09)
Even as the 20th anniversary of Cornelia de Lange Syndrome Awareness Day is celebrated on May 9, many people still ask,...
Eileen Ahearn joins CdLS Foundation Board of Directors (02/20/09)
Eileen Ahearn, M.D., Ph.D., of Madison has joined the board of directors of the national Cornelia de Lange Syndrome (CdLS) Foundation...

CdLS in the News

Mom raises awareness of son's rare disorder (12/14/09)
Norwich Bulletin
With tiny hands and feet, Ryan O'Connell looks like a child - but he is 24 years old. When he sees his mother, Shari Drake, he reaches for her.
Behind the Marathon Mission (10/18/09)
The Saratogian
A family dedicated to caring for their disabled son would do anything to raise public awareness of his rare syndrome, including running a marathon.
Leading the Way (10/1/09)
Daily Breeze
One of Julie Gonella's darkest moments in raising a child with special needs came about 20 years ago, but the Manhattan Beach resident remembers it clear as day...
Rare condition makes life challenging for 7-year-old, family (6/1/09)
Statesville R&L
Kimberly Herrera waited at the end of the Sloans' driveway for the school bus doors to swing open. She heard it coming up the road before it reached Four Winds Drive....
One Family's Saving Grace
South Mississippi Living (6/2009)
Ella Grace Musial is a sweet and happy one-year-old. Although she was born with a rare congenital disease known as Cornelia de Lange Syndrome....
Hunter is Knowle's family 'miracle' (5/29/09)
Hampton Union
Everybody loves Hunter....
Educators receiving education (5/14/09)
Iowa Park Leader
Two educators have received an education after taking in a young man diagnosed with Cornelia de Lange Syndrome....
City mom feels blessed having a CdLS child (5/9/09)
Columbus Telegram
Rachelle Riedmiller always knew she wanted to be a mom....
CdLS Foundation Celebrates Awareness Day May 9: Parents learn to advocate for children with uncommon syndrome (5/4/09)
Journal Newspaper Group
As the 20th anniversary of Cornelia de Lange Syndrome (CdLS) Awareness Day is celebrated on May 9, many people still ask, “Cornelia-d-what?”...
Ben & Jane. Young man has made tremendous strides in overcoming handicap of rare congenital syndrome. (3/26/09)
Laconia (NH) Daily Sun.

2006 News Archive

2007 News Archive

2008 News Archive

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