Cornelia de Lange Syndrome Foundation, Inc.
302 West Main St. #100
Avon, CT USA 06001
Phone: 860-676-8166
Phone: 800-223-8355
Fax: 860-676-8337
email: info@cdlsusa.org
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Press Room
Welcome to the CdLS Foundation Press Room. Here you can view CdLS Foundation press releases and CdLS-related news coverage. For specific information about CdLS and the Foundation, please go to About Us.
 News Releases
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CdLS in the News
- Survival at the Chicago Marathon: Where There's a Will, There's a Way
Adirondack Sports & Fitness
The 30th running of the Chicago Marathon made history … (go to page 14)
- Hardships Don't Stop Hiker's Trek for Child (11/2/07)
Douglas County Sentinel
Through seven months, 14 states, 2,174 miles and millions of steps, local hiker Jim Schiwal's journey across the Appalachian Trail was for a single cause - raising funds for the Cornelia de Lange Syndrome Foundation....
- Woman Stringing Beads to Battle Ailment (10/13/07)
Suncoast News
Bella Thompson is on a mission. The 78 year old Holiday-area resident has been making jewelry nonstop....
- Taking Care of Brendan (10/12/07)
Winchester Star
The first time Michelle Rees called her baby's name, he didn't respond to her voice....
- Area woman seeks to raise funds to fight syndrome (9/30/07)
The Saratogian
A local woman and her team are going to head to Chicago next week to raise money for children with CdLS....
- Living each day with CdLS (9/14/07)
Tewksbury Advocate
Ten years ago, Donna Rocco, mother of two children, would’ve never dreamed that she would live for the tiny twinkle in Brody, her small, 10-year-old son’s eyes....
- GW sophomore runs marathon in honor of brother (9/13/07)
The Daily Colonial
Take a walk over to the Lerner Health and Wellness Center on virtually any afternoon and you’ll find treadmills filled with student runners....
- Running to save a life (9/13/07)
The GW Hatchet
Sophomore to run marathon for brother....
- School teaches students to swim by knowing their different strokes (this article features a preschooler with CdLS) (8/15/07)
CNN.com/living
Maya has Cornelia de Lange Syndrome, which causes...
- CdLS: Foundation reaching out to people, families affected by rare genetic condition (7/30/07)
Deseret Morning News
Alyssa Turner, 13, looks a lot like Karli Humphrey, 14.....
- Hiker For A Cause Stops In Salisbury (7/19/07)
Litchfield County Times
With his current hike of the Appalachian Trail underway....
- Hiker Walking The Appalachian Trail For Charity (7/17/07)
The Hartford Courant
When Jim Schiwal began his roughly 2,175-mile trek of the Appalachian Trail this year to raise money for an Avon-based charity...
- Full Speed Ahead (5/9/07)
Waterloo-Cedar Falls Courier, 2007
Troy Wilson wasn't even a year old....
- Race For Grace (4/30/07)
Kent Reporter, 2007.
Grace Papka, 6, doesn’t seem to share…
- Straight From the Heart (4/29/07)
Times Record News, 2007.
- NPR's Story Corps: A Virginia couple talks about their little girl with
CdLS. (4/27/07)
- Families Share Coping Skills (4/21/07)
Juneau County Star-Times, WI.
Karla and Mike Postell do not give half-heartedly when …
- Schiwal Walking For a Cure (2/1/07)
Douglas Neighbor, 2007.
Jim Schiwal is making the Woodie Fite Senior Center proud....
- Annual Race To Raise Money, Awarenes of Cornelia de Lange Syndrome (1/19/07)
Clayton Daily News, 2007.
Maya Pomfret does things that most children do.....
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