Navigating Health Care Systems
Ensuring your loved one with CdLS gets the care they need can seem like a full-time job. There are multiple care systems to understand, and it can quickly become confusing. This page is here to help you navigate.
CdLS Health Care Notebook
The CdLS Health Care Notebook is the first of multiple tools from the CdLS Foundation that makes accessing and coordinating care more manageable. It provides an easy way to keep track of important information so you can find it and share it any time you need. You can update the notebook in real-time, with the ease of a smartphone or any electronic device.
Introducing the CdLS Health Care Notebook
Review the CdLS Foundation’s new advocacy tool that encourages better communication between families and the medical community, school systems, and social environments. This new feature will help you stay organized and help relieve some of the burdens of educating others about CdLS.
Presenter: Linda Pierce, M.S.W., Program Director, Family Service
Navigating Your Health Plan
It is a challenge for just about everyone. Make sure you make the best selection possible for your family. Understanding your benefits and how to get the most from your health plan is even more important when someone has complex care needs.
Presenter: Linda Pierce, M.S.W., Program Director, Family Service
Request A Publication
We also have many publications about CdLS you can keep, share, and include in your Health Care Notebook. We can email or mail any publications listed. Please note, we can only mail hard copies to the United States.
