Cornelia de Lange Syndrome Foundation, Inc.
302 West Main St. #100
Avon, CT USA 06001
Phone: 860-676-8166
Phone: 800-223-8355
Fax: 860-676-8337
email: info@cdlsusa.org


Give




Donate Online

Visit our online donation form to make a contribution conveniently and securely.

Matching Gifts

A matching gift is an effective way to magnify your personal contribution to the CdLS Foundation. Ask your employer or someone in your company’s human resource department about the company’s matching gift program. If you include a matching gift form with your contribution, we will complete the form and return it as directed.

Stock Donations

You may make a gift to the CdLS Foundation by donating stock. You are entitled to a charitable deduction for the full, fair-market value of the stock at the time you sign over its ownership to the CdLS Foundation. The donated stock is not taxed on any appreciation and there is no capital gains tax on stock transfers to the CdLS Foundation. To make a stock donation, please call Darrell Cookman, the CdLS Foundation Director of Individual Giving at (800) 223-8355 or e-mail him at: Giving@CdLSusa.org.

Major Gifts

We encourage you to consider making a major gift in support of the CdLS Foundation, the only organization in America that develops programs and services to help people touched by CdLS. Your major gift will go a long way toward furthering our mission of promoting early and accurate diagnosis, encouraging research, and providing family support. For more information about making a major gift, please call Darrell Cookman, the CdLS Foundation Director of Individual Giving at (800) 223-8355 or e-mail him at: Giving@CdLSusa.org.

You can support the entire mission of the CdLS Foundation by making a general donation or by making a gift to support specific CdLS research initiatives, family services, educational publications or awareness programs.

Sponsorship Opportunities

You may sponsor CdLS Foundation activities at the local (family gathering), regional (Connections Meeting) and national (Conference) level. For more information about sponsorship opportunities and benefits, please call Darrell Cookman, the CdLS Foundation Director of Individual Giving at (800) 223-8355 or e-mail him at: Giving@CdLSusa.org.

Including CdLS in Your Will

While you are making plans for your estate to benefit your family, we hope that you will consider including a legacy gift to ensure that the CdLS Foundation remains the vital organization that families of children with CdLS will continue to need in the coming years. Planned gifts can be made in specific dollar amounts or percentages of an estate. To discuss the different benefits and options you have in making a planned gift to the CdLS Foundation, please call Darrell Cookman, the CdLS Foundation Director of Individual Giving at (800) 223-8355 or e-mail him at: Giving@CdLSusa.org.

Fundraising Events

Hosting a fundraising event is an excellent method for raising awareness and funds to help find and serve children with CdLS. With help from Foundation staff, you can plan, organize and host a variety of events that will energize and unite your community to advance our mission. We will provide you with appropriate promotional/awareness materials, help you submit press releases to your local paper, provide sample sponsorship request letters, and assist in thanking all the donors and volunteers that help make your event a success. To learn more about hosting an event to benefit children with CdLS, please call Gail, the CdLS Foundation Events Coordinator at (800) 223-8355 or e-mail her at: awareness@cdlsusa.org.

View and print the Fundraising Event Guidelines Form (.pdf).

Support "Team CdLS"

Wish List

  • Volunteer with TiVo or similar digital recording capability.
  • Photos and stories of people with CdLS for publications/website.
  • Cell phone and long distance minutes.
  • Postage for publications and mailings to families.
  • Airfare or travel "awards" for Staff and Doctors to travel to Foundation events.

Subscribe and Save while you Give to Help Children with CdLS!

The Cornelia de Lange Syndrome (CdLS) Foundation has partnered with Reader's Digest to offer you the opportunity to purchase your magazine subscriptions at a discount while helping children with CdLS at the same time! Purchase new, renew or extend your existing magazine subscriptions through our online store at: www.CdLSmags.com and receive up to 85% off newsstand prices on a choice of more than 650 popular magazine titles. Reader's Digest will give 40% of every dollar you spend directly to the CdLS Foundation to bring light, help and hope to everyone touched by the syndrome!

Vehicle Donation Program

Shop Online

Use iGive when you shop online at your favorite stores and the merchant will donate a portion of the purchase price to the CdLS-USA Foundation.

Use iGive to shop online

Donor Privacy Policy

The CdLS Foundation does not sell, trade or share personal or contact information with anyone else, nor send mailings on behalf of other organizations. Parents and others caring for people with CdLS can always “opt-out” of email or written correspondence without concern for losing services.





Donate Online
Donate Online





Questions or comments about this site?
Email the webmasters at webmaster@cdlsusa.org


Privacy Policy | Terms of Use | Contact Us | Site Map | Feedback
Last Updated 9/7/08
© CdLS-USA Foundation, Inc., 2008.