Rylie

State: New York

Date of Birth: 06/20/03

Birthweight: 3 lb 5 oz Weight: 23 lb Height: 32 in

Limb Differences: Yes

Siblings: Brother - Justin 2002; sister- Tessa 2007.

Living Arrangements: At home

Favorite Things: She is now riding a regular tricycle. She is drinking thickened liquids through a straw. At first she was a bit jealous of her new sister, but she is warming up to her with hugs and kisses. Rylie no longer requires the use of her posterior walker, she is walking independently!

Favorite Activities: Rylie loves bathtime, she attends preschool five days a week and she has shown great progress. She loves playing with her brother.

Share & Learn: When it comes to feeding difficulties, it is important to follow your child's cues. Rylie helped us to take it slow and let her improve her skills. She improved slowly, but it has been worth the wait. We are confident that she will be off her G-tube someday.