Thank you for visiting the CdLS Family Album. We hope the pictures and stories in this album will become a sustaining source of inspiration for all who read these pages. Please click on a picture or look up a name in the menu below to read an individual profile. We thank the families and caregivers who have shared the pictures, memories, and wisdom they have gained from their loved-ones with CdLS. In order to protect all members of our CdLS Family, we will publish only first names of individuals who have submitted a profile as well as the state (not city) in which they reside. At this time, the album is open to anyone residing in the United States.
Personal support is our number one priority. If you wish to be in contact with any of the individuals represented here, please contact us directly by calling 1-800-753-2357 between 9 and 5 EST.
Adrian
b. 1994
New Hampshire |
Brenden
b. 1997
Ohio |
Alex
b. 1994
Pennsylvania |
Anna
b. 1996
Colorado |
Nicole
b. 1993
California |
Aaron
b. 2000
Rhode Island |
Brian
b. 1994
Minnesota |
Brittany
b. 1987
South Carolina |
David
b. 1982
Kansas |
Frank
b. 1993
New York |
Gregg
b. 1965
New Mexico |
Maddy
b. 1996
Texas |
Marci
b. 1979
Ohio |
Mary
b. 1994
California |
Mikey
b. 1988
California |
Robby Jr.
b. 1958
Wisconsin |
Samantha
b. 1986
New York |
Sarah
b. 1985
West Virginia |
Tami
b. 1985
Nebraska |
Baylee
b. 1996
Nebraska |
Jessie
b. 1994
Massachusetts |
Jack
b. 2000
New York |
Brianne
b. 1991
California |
Kayla
b. 1993
Wisconsin |
Jessica
b. 1990
Mississippi |
The Cornelia de Lange Syndrome Foundation does not recommend or endorse any one product, method, resource, or service. All information contained here within is for the personal interest or investigation of the reader. Individuals included in this album may or may not have a confirmed diagnosis of CdLS. Information on treatment, medication, diet, etc., is not intended as a guide for self-treatment. Questions and concerns about treatment should be discussed with your doctor or other appropriate professionals.