Cornelia de Lange Syndrome Foundation, Inc.
302 West Main St. #100
Avon, CT USA 06001
Phone: 860-676-8166
Phone: 800-223-8355
Fax: 860-676-8337
email: info@cdlsusa.org


Awareness Coordinators


Awareness Coordinators are volunteers who raise community awareness about CdLS through media, public activities and events. This can include public speaking engagements, and maintaining a presence at health, school and town fairs, bake sales and classroom presentations. These volunteers, most of whom are family and caregivers, are passionate about increasing public consciousness and dispersing information to the community at large, including professionals. For additional information about the Awareness Coordinators and activities in your state please contact the CdLS Foundation’s Outreach Coordinator at outreach@cdlsusa.org.




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Last Updated 1/27/07
© CdLS-USA Foundation, Inc., 2007.