Cornelia de Lange Syndrome Foundation, Inc.
302 West Main St. #100
Avon, CT USA 06001
Phone: 860-676-8166
Phone: 800-223-8355
Fax: 860-676-8337
email: info@cdlsusa.org

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Disclaimer: All information contained herein is for the reader's personal interest. Articles on treatments, medications, or procedures etc. are not guides for self-treatment. Questions should be discussed with your doctor or other appropriate professionals.

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ADHD and Medicines
ADHD
Abdominal pain
Adverse Side Effects of Teratogens
Allergy to Formula
Anemia 1
Anemia 2
Anesthesia For Dental Work
Anesthesia Timeline
Anesthesia for Undescended Testicles
Antianxiety Drugs
Appendix Residual Problems
Asthma
Ataxia 1
Ataxia 2
Auditory Testing
Babbling
Barium Swallow
Barretts Esophagus
Behavior 1
Behavior 2
Behavior/Aggression
Behavior/Dental/Molars
Behavior/Diets
Behavior; Hand Staring, Mouthing Objects
Behavior, Ripping, Destruction of Toys
Behavior, Picking/Pica
Behavior Medication 1
Behavior Medication 2
Behavior Medication 3
Behavior, Rigidity, Anxiety, and Mood Swings
Behavioral Issues and Behavior Plan Considerations
Biopsy and reflux meds
Birth Control and Weight Gain
Birth Control: Depo-Provera vs. the patch
Bladder Control
Blepharitis
Blood Replenishment
Blue extremities
Body Odor and Bloody Diaper
Bone Age
Bone pain
Breaking Eye Glasses
Brittle Bones
Brittle Bones 2
Caloric Intake Via Feeding Tube
Canker Sores
Car Seat and Stroller Suggestions
C-Difficile Treatment #2
C-Difficile Treatment
C- Difficile (Colitis)
CdLS – Syndrome, Disease or Disorder?
Central Apnea
Chiari Malformation
Chronic GI Pain
Chronic Ear Problems
Circumscision
Cleft Lip and Palate
Cleft Palate
Cleft Palate Prevalence
Cleft of Soft Palate
Coarctation of Aorta
Cognitive Testing
Colic
Colon
Compulsive Behavior
Considering Fundoplication
Constipation and G-tubes
Constipation and Reflux
Constipation
Constipation 2
Contracture Injections
Cord Blood
Cornea
Cortical Vision Impairment
Craniosynosis
Cyclical Behavioral Patterns
Cyclical Vomiting and Abdominal Migraines
Dehydration
Dental/Grinding/Sliming
Detached Retina
Developmental Delay
Developmental Issues
Diaphragmatic Hernia and CdLS
Dietary considerations for reflux
Dietary supplement
Drug Side Effects
DSM IV AXIS Diagnostic Code for CdLS
Duplication 3q Syndrome
Dysgraphia
E E G
Ear Tube Surgery
Ear Tubes
Ear Tubes 2
Ear Tubes 3
Education, Discrete Trial Learning, Curriculum
Elderly Persons with CdLS
Encopresis
Eye Discomfort
Eye Infection
Eyes-Excimer Laser Surgery
Failure to Thrive
Feeding Issues 1
Feeding Tubes
Feeding and Dysphagia
Flatulence
Flu Shots
Fractures
Frenectomy
Fundoplication Alternative
Fundoplication Risks
Fundoplication Undone
G-Tube and Formula
G-Tube Removal
G-Tube and Vomiting
G-Tube Falling Out
Gastroenterology-Bile
Gastroenterology-Feeding
GI Issues 1
GI Issues 2
GI Issues 3
GI Issues 4
GI Issues related to Mouth Odor/Teeth Darkening
GI Medications
GI Meds Potency
Genetics
Genitourinary Issues
Granulation
Growth & Calories
Growth Hormones 1
Growth Hormones 2
Growth Hormones 3
Hair Pulling 1
Hair Pulling 2
Hearing Aides
Hearing/Flat Tympanograms
Heredity
Heredity and level of affectedness CdLS
Hiatal Hernia
Hiatal Hernia Treatment
Hip Issues (Back Arching)
Hip Rotation
Hip Subluxation
Hyperactivity and Attention
Hypertension
Immune System
Incontinence
Insomnia
Irregular Menstruation
IV Protocol
Keeping Glasses On
Ketogenic Diet
Kidney reflux and Acidophilis
Kidney reflux (Hydronephrosis)
Lack of Weight Gain (Walking, Psychiatric Medications)
Lactose Intolerance (Formula Alternatives, Fat Intake)
Life Expectancy
Lower abdominal pain
Malrotation
Malrotation Recurrence
Malrotation Surgery
Massage Therapy
Medical Needs At School
Medication Reactions
Medications - Seizures
Menstrual Cycle
Menstruation
Menstruation 2
Mental Retardation
Mic-key Site Irritation
Microcephaly
Microcephaly 2
Migraines
Miralax-Constipation
Miscarriage
Missing Teeth
Mouthing
Nasal Polyps
Neonatal Hypertension
Neuropathic Pain
Nexium Use
Nipple Feeding
Nissen Fundoplication, Life Span of
Nonverbal Communication (vocal cords)
Nystagmus
Obesity
Obsessive Compulsive Behavior
Occupational Therapy
Occurence of CdLS by Sex
Oral Feeding and Weaning
Oral Motor Apraxia
Orthopedics
Orthopedics/Prosthesis
Oxygen Levels
Painful Bowel Movement
Pancreatitis
Penis Size
Perseverative Behavior
Postoperative Pain Medication
Precocious Puberty
Premature Puberty
Prenatal Diagnosis
Prilosec Side Effects
Progressive Condition/Respiratory Arrest
Psychological Testing
Ptosis Redo
Ptosis Surgery
Ptosis Surgery (Blepharitis, Sties)
Ptosis
Puberty and Birth Control
Puberty in Males
Pulling Eye Teeth
Pulling Out Buttons
Pulmonary Stenosis
Raynauds Phenomenon
Reading Programs
Receding Gums (Wisdom Teeth, Gingival Grafts)
Recurrence, Germline Mosaicism
Recurrence in Offspring (Fertility)
Recurrence Rate
Recurrence Rate 2
Recurrence Risk
Recurrent infections
Reflux - When to Test
Reflux and Allergies
Reflux and Tooth Decay
Refusal to Walk
Reglan Use
Respiratory Arrest/Progressive Condition
Retracted Testicle
Reversing Nissen
Rice Cereal Allergy
Right Side Weakness
Risperdal
SIB & Oral Retainers
Secretin
Sedation for Dental Work
Seizure Activity
Seizure Auras
Seizure Medication
Seizure Medication 2
Seizure Onset Age
Seizures and Age
Seizures Effects
Seizures
Selective Mutism
Self Injury And Hair Pulling
Sensory Integration and Feeding
Sexuality
Sibling Speech
Sinus Infections/Nasal Polyps
Sitting for a Barium Swallow
Skin Conditions
Sleep and Melatonin
Sleep Difficulties
Sleep Medications
Sleeping Too Much
Slow Weight Gain
Smallpox Vaccine/Immunization
Solid Foods, Introducing
Speech & Language
Speech & Language - Helpful Hints
Speech vs. Communication Devices
Sperm Production
SSRI (Serotonin Reuptake Inhibitor) Withdrawal Syndrome
Staring and Mouthing
Strabismus Surgery
Stroke
Styes
Submucous Cleft Palate
Sudden Weight Gain
Surgical Weight Limit
Teeth Exfoliation
Teeth Grinding 1
Teeth Grinding 2
Teeth Growth
Teething
Teething 2
Tegretol Side Effects
Testosterone Injections
Tethered Spinal Cord
Thalassemia
Toe Walking
Toilet Training
Toilet Training For Loose Bowels
Tracheomalacia
Trazodone Side Effects - Hair Loss
Treatment Options for Small Jaw
Treatment of Scoliosis
Tympanic Membrane Perforation
Tympanomastoidectomy
Ultrasound
Ultrasound Growth Plotting
Urinary Tract Infection 1
Urinary Tract Infection 2
Urine Odor
Undescended Testicles 1
Undescended Testicles 2
Unwillingness to Walk
Vaccinations
Walkers
Weight Gain & Aging
Weight Gain 1
Weight Gain 2
Weight Gain
Weight Gain and Birth Control
Wisdom Teeth






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Last Updated 2/18/07
© CdLS-USA Foundation, Inc., 2007.