Foundation Staff

Family Service Coordinators

Lynn Audette, M.S.W. -- families@cdlsusa.org
Janette Peracchio, M.Ed -- familyservice@cdlsusa.org
Deirdre Summa, M.S.W. –- familysupport@cdlsusa.org

• Provides information and personal support to family and caregivers.
• Matches families with local family volunteers Regional Coordinators (RC) and those with similar concerns
• Facilitates answers to medical, developmental and educational questions.

Information Coordinator

Barbara Koontz, info@cdlsusa.org

• Provides information to professionals.

Director Of Individual Giving

Darrell Cookman, giving@cdlsusa.org

• Develops financial, volunteer, and leadership resources in order to support the mission and goals of the Foundation.

Events Coordinator

Gail Speers, awareness@cdlsusa.org

• Supports organization of events to benefit the mission of the CdLS Foundation, assisting event organizers with mailings, sponsorship solicitations, and providing Foundation materials to promote outreach.

Director of Communications

Kalia Kellogg, communications@cdlsusa.org

• Conveys the organizational mission and vision through various media and publications, including the Foundation’s bi-monthly newsletter, Reaching Out, published continuously since 1977.

Director of External Affairs

Marie Concklin Malloy, outreach@cdlsusa.org

• Promotes public awareness of CdLS, the Foundation and its services through outreach to the media, the community and government officials.
• Oversees the volunteer Awareness Coordinator program.

Executive Director

Liana Garcia-Fresher, R.D., M.S., director@cdlsusa.org

• Maintains the mission and goals of the Cornelia de Lange Syndrome (CdLS) Foundation as established by the Board of Directors.
• Responsible for the general administrative and organizational duties required in the operations of a not for profit foundation.
• Coordinates research efforts and communicates directly with the Clinical Advisory Board (CAB) and other interested professionals.