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About CdLS

Meet the Experts

The CdLS Foundation enlists help from various experts in the medical, educational and professional fields to provide families with the most up-to-date information and advice.

The CdLS Foundation’s Clinical Advisory Board (CAB) and Professional Development Committee (PDC) are comprised of some of the foremost specialists in the fields of genetics, education, research, psychiatry, and much more.  Many volunteer their time to answer questions through our Ask the Expert service and provide consultations at family gatherings/conferences.


  • Dale Dorsett, Ph.D., Biochemistry & Molecular Biology
  • Jennifer Gerton, Ph.D., Biochemistry & Molecular Biology
  • Marco Grados, M.D., M.P.H., Child Psychiatry
  • Robert Greenstein, M.D., Clinical Genetics
  • Ian Krantz, M.D., Clinical Genetics
  • Laird Jackson, M.D., Clinical Genetics
  • Matthew Deardorff, M.D, Ph.D., Clinical Genetics
  • Yves Lacassie, M.D., Clinical Genetics
  • Antonie Kline, M.D., Clinical Genetics
  • Trevor Hoffman, M.D., Ph.D., Clinical Genetics
  • Soma Das, Ph.D., FACMG, Molecular Genetics
  • Arthur Lander, M.D., Ph.D., Developmental Biology
  • Alena Egense, MGC, CGC, Genetic Counselor
  • Amy Kimball, M.S., Genetic Counselor
  • Sara Noon, M.S., Genetic Counselor
  • Natalie Blagowidow, M.D., Gynecology, Genetics
  • Michele Lambert, M.D., Hematologist
  • Soma Jyonouchi, M.D., Immunology
  • Clair Francomano, M.D., Internal Medicine, Genetics
  • Anne Calof, Ph.D., Neurodevelopmental Biology
  • Ronald Berger, M.D., Ophthalmology
  • Aaron Zuckerberg, M.D., Pediatric Anesthesia, PICU
  • Jeff Rockow, M.D., Pediatric Cardiology
  • Douglas Clemens, D.M.D., Pediatric Dentistry
  • Richard Mungo, D.D.S., Pediatric Dentistry
  • Rochelle Lindemeyer, D.D.S., Pediatric Dentistry
  • Joni Rampolla, L.D., Pediatric Dietetics
  • Loretta Gore, R.D., L.D.N., Pediatric Dietetics
  • Carol Potter, M.D., Pediatric Gastroenterology
  • David Tuchman, M.D., Pediatric Gastroenterology
  • Kathleen Loomes, M.D., Pediatric Gastroenterology
  • Lynette Gillis, M.D., Pediatric Gastroenterology
  • Kristen Baranano, Pediatric Neurology
  • Lynne Kerr, M.D., Pediatric Neurology
  • Alex Levin, M.D., Pediatric Ophthalmology
  • Christianne Schoedel, M.D., Pediatric Ophthalmology
  • Susan Schloff, M.D., Pediatric Ophthalmology
  • Carmen Pichard, M.D., Pediatric Orthopedics
  • Stacey Ishman, M.D., Pediatric Otolaryngology
  • Katherine Farr, D.P.T., Physical Therapy
  • Mark Kliewer, M.D., Radiology
  • Cheri Carrico, Ph.D., CCC-SLP, Speech-Language-Feeding
  • Patti Bailey, M.S., CCC-SLP; Speech-Language-Feeding
  • Nancy Mathis, M.S., CCC-SLP, Speech-Language Pathology
  • Ming-Hsien Wang, M.D., Urology


  • Christine Ackermann, M.S., O.T., Occupational Therapy
  • Ingrid Barone, R.N., Nursing
  • Mary Beth Bruder, Ph.D., Educational Psychology
  • Joann Fleckenstein, M.S., O.T., Occupational Therapy
  • Urbi Ghosh, Ph.D., Education
  • Amy Metrena, M.S.P.T., Physical Therapy
  • Julia O’Connor, Ph.D., Clinical Psychology
  • Rachel Hueston, Education
  • Shelly Champion, M.Ed., Special Education
  • Barbara Galyean, M.Ed., Special Education Assessments
  • Mary Pipan, M.D., Developmental Pediatrician
  • Roger Woerner, B.S., SpEd., Special Education Behavior Management
  • Mary Levis N.C.S.P., School Psychology
  • Geir Rosvik, M.Ed., Adaptive Physical Education
  • Denise Williams,MS, Early Childhood Education
  • updated 11/16