Resources and Information for Speech-Language Pathologists

Thank you for taking the time to learn more about how you can help children with Cornelia de Lange Syndrome (CdLS). Difficulties with speech and language are common in children with CdLS, whether they are mildly or severely affected by this genetic syndrome. Thousands of children remain undiagnosed. One of these children may be your client.

Please be sure to view our Find One Child video, as well as learn about the clinical features of CdLS. If you suspect a child you work with has CdLS, or if you are providing service to a person with the syndrome, please let us know how we can help by filling out the form at the bottom of the page.

Below are links to information that you may find helpful to both educate yourself about CdLS and treat individuals with the syndrome.

• Download a PDF of the Speech and Language issue of our newsletter, Reaching Out


• Common speech and language issues in CdLS


• Articles about CdLS and speech, language and feeding:
  
  • Communication Intervention in Cornelia de Lange Syndrome
  • Experts Speak Out on Facilitating Communication
  • Speech & Language: Try and Try Again to Help Child Develop Speech
  • Communication Development and Characteristics
  • Common Feeding Issues and Forming A Treatment Plan
  • Managing Feeding Issues in Individuals with CdLS
  
  
• Ask the Doctor questions and answers regarding speech, language and feeding
  • Speech and language
  • Speech and language – helpful hints
  • Speech vs. communications device
  • Feeding and dysphagia
  • Cleft palate
  
  
• Download a PDF of our bi-monthly newsletter, Reaching Out.